One of the hardest balances caregivers walk is managing expectations while still holding hope for a safe and meaningful future. My nonverbal, profoundly autistic 22-year-old son, Skyler, is enjoying his adult day program and opportunities to be out in the community. But during a recent outing, he became dysregulated — smacking a few employees and…
One of the hardest parts of being a parent caregiver isn’t just the exhaustion or the burnout—it’s the quiet loss of connection. And almost no one talks about it. We spend our days managing the pressures of caring for our special needs children, and over time our world narrows. We become so hyper-focused on caregiving…
As a parent of a nonverbal autistic adult, I’ve learned not to expect my family’s reality to show up on television. Most shows simply don’t go there—at least not in a way that feels honest, nuanced, or grounded in lived experience. So when I started watching the Peacock series ‘All Her Fault,’ I didn’t anticipate…
Author: Brooke Hasch, WHAS 11 News Reporter Published: 12:43 PM EDT April 30, 2025 Families in Kentucky and Indiana struggle with autism services due to age restrictions and lack of facilities, forcing some to move for better care. CHARLESTOWN, Ind. — Families who rely on Autism services are facing a crisis across Kentucky and Indiana. There’s a…
Announcement… We’re MOVING!!! For the entirety of my nonverbal, profoundly autistic son’s almost 22 years of life, I estimate that I’ve asked millions of questions, spent hundreds of hours on the phone fighting for services and funding, battled the ignorance of countless ‘experts’ who repeatedly underestimate his intelligence or overlook his abilities and have been…
Last week I attended the annual fundraising gala for the incredible nonprofit organization that employs me as my 21-year-old, nonverbal autistic son Skyler’s SLP (supported living provider). Throughout his lifetime, we have never successfully secured respite services thus, we’ve never experienced a break from caregiving. Aside from occasionally relying on the kindness of friends or…
While there is no stable, universally understood concept of “normal,” most of us are raised to believe that to be fully embraced into societal norms our lives must follow a similar cycle to this – graduate from high school then college, secure a high paying job in a chosen career, get married, start a family,…
My son, Skyler who has severe, nonverbal autism, dyspraxia and Crohn’s disease is mere months away from turning 21 and it has me constantly worried about what’s next – for him and for me. Throughout my 20 years of parenting Skyler, the only thing that has significantly changed has been my title. The majority of…
At the risk of receiving a boatload of backlash for being negative, I’m going to be completely honest. While I make every effort to share the good and difficult parts about being a lifelong caregiver to my adult son with severe, nonverbal autism, sometimes the tough times stick around longer than I’d like and make…
The days are growing shorter as that dreaded time draws near, His age dictates there’s no longer a need, so services and programming abruptly disappear. At the moment of diagnosis, I was told all the things my son would never do, “But look at him now,” I scream aloud, “Your predictions were so untrue.” He…