I’ve been absent from this page for several months and the truth is, it’s because we are really struggling, and I wasn’t sure what to say. I’ve wrestled with sharing my raw feelings and not diminishing the ‘hard’ we are experiencing through a silver lining filter out of fear of being labeled a complainer. But…
It never gets easier. The wondering, the worrying and ultimately the sadness of never knowing the cause or scenario behind new injuries. My 21-year-old, nonverbal autistic son came home from his autism center with this shiner and he’s unable to tell us how it happened. And it’s not just the bumps & bruises randomly appearing…
It’s taken me 49 years to recognize a very important concept… the energy of surrender accomplishes much more than the energy of control. And I have my nonspeaking, autistic 21-year-old son, Skyler to thank for teaching me that valuable lesson. You see, as much as I hope, pray & dream that Skyler will become even…
For approximately 19 years, I have been slapped and hit daily. The culprit…my 21-year-old son Skyler, who is on the severe end of the autism spectrum, is non-speaking, has global motor difficulties and suffers from Crohn’s disease. He uses physical contact as his primary method of communication. We’ve tried every tactic shared with us…
Today was a tough day. In fact, one I’ve somehow been able to avoid for 17 years. My nonverbal, severely autistic adult son had to undergo an IQ test / Psychological Assessment in order to ‘prove’ his continued need for services provided by the Medicaid waiver. Because we all know kids outgrow autism and don’t…
I have a confession to make… I lack the ability to sit still and am a hoarder of all things pertaining to my kids. Whether it’s the adorable creations crafted by their own little hands or papers pertaining to each of their individual experiences with education (IEPs, report cards, therapy notes, A+ essays, science projects,…