When I became a mother to my son, Skyler, I had many dreams and plans. Even at the age of 3 when he was diagnosed with autism and the landscape & process for when and how he would achieve those dreams changed, I held on tight. With each visit to the various medical providers throughout…
It never gets easier. The wondering, the worrying and ultimately the sadness of never knowing the cause or scenario behind new injuries. My 21-year-old, nonverbal autistic son came home from his autism center with this shiner and he’s unable to tell us how it happened. And it’s not just the bumps & bruises randomly appearing…
It’s taken me 49 years to recognize a very important concept… the energy of surrender accomplishes much more than the energy of control. And I have my nonspeaking, autistic 21-year-old son, Skyler to thank for teaching me that valuable lesson. You see, as much as I hope, pray & dream that Skyler will become even…
For approximately 19 years, I have been slapped and hit daily. The culprit…my 21-year-old son Skyler, who is on the severe end of the autism spectrum, is non-speaking, has global motor difficulties and suffers from Crohn’s disease. He uses physical contact as his primary method of communication. We’ve tried every tactic shared with us…
Today was a tough day. In fact, one I’ve somehow been able to avoid for 17 years. My nonverbal, severely autistic adult son had to undergo an IQ test / Psychological Assessment in order to ‘prove’ his continued need for services provided by the Medicaid waiver. Because we all know kids outgrow autism and don’t…
I have a confession to make… I lack the ability to sit still and am a hoarder of all things pertaining to my kids. Whether it’s the adorable creations crafted by their own little hands or papers pertaining to each of their individual experiences with education (IEPs, report cards, therapy notes, A+ essays, science projects,…
The days are growing shorter as that dreaded time draws near, His age dictates there’s no longer a need, so services and programming abruptly disappear. At the moment of diagnosis, I was told all the things my son would never do, “But look at him now,” I scream aloud, “Your predictions were so untrue.” He…
Where do you see yourself in the next 5 years? It’s a question I’ve been asked more than a dozen times throughout my life in various situations – post college graduation and job interviews are among the most common scenarios. Back then, I would answer confidently, sharing the goals and visions I had set for…
This is us. A forever, inseparable party of three. Weekends spent in perpetual motion, trying to keep our 20-year-old, autistic, nonverbal son entertained. Always on repeat, his mind and body requiring the same regimented plan for the day. Awakened at dawn due to urine-soaked bedding followed by a quick shower and demand for his favorite…
Twenty years… That’s how long I’ve waited for a simple hug from my son. You see, my 20-year-old son Skyler is on the severe end of the autism spectrum, is non-speaking, has global motor difficulties and suffers from Crohn’s disease. Frequently people ask me how I know that Skyler loves me or appreciates the great…